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The International Ventilator Users Network (IVUN)〔http://www.ventusers.org/ Homepage of International Ventilator Users Network〕 is a nonprofit network of mechanical ventilation users, respiratory health professionals, and ventilatory equipment manufacturers. Its focus is on the health and independent living of ventilator users, whether they are using assisted ventilation long-term – at home or in nursing facilities—or short-term in emergency rooms and critical care units. Many ventilator users have neuromuscular conditions, such as respiratory polio or post-polio syndrome, amyotrophic lateral sclerosis (ALS), muscular dystrophy, spinal muscular atrophy (SMA), spinal cord injury (SCI), or congenital central hypoventilation syndrome (CCHS). Historically, IVUN’s efforts have been primarily addressed to ventilator users with neuromuscular conditions. But people who have chronic obstructive pulmonary disease (COPD) or obesity hypoventilation syndrome may also need to use assisted ventilation. == Mission== IVUN’s mission is “to enhance the lives and independence” of ventilator users “through education, advocacy, research, and networking” among ventilator uses, respiratory health professionals, and ventilatory equipment manufacturers.〔IVUN homepage.〕 Support comes from individual members, donors, and sponsors. IVUN’s parent organization is Post-Polio Health International (PHI).〔http://www.post-polio.org/ PHI homepage.〕 It shares that organization’s headquarters and staff in St. Louis, Missouri, as well as its volunteer Board of Directors. IVUN’s publications, website, and volunteer advisory boards are its own, however. 抄文引用元・出典: フリー百科事典『 ウィキペディア(Wikipedia)』 ■ウィキペディアで「International Ventilator Users Network」の詳細全文を読む スポンサード リンク
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